IGAN is an interest group for those affected and interested parties. It corresponds to a solidarity concept of kindred spirits who are looking for help and to give help if possible, for as many people affected and interested groups possible.
Such a desired wide effect requires publicity and active participation of as many members as possible.
IGAN has not gone down the path of answering questions from patients and interested parties via a hotline, a call centre or full-time employees in individual, private face-to-face contact or by lending an ear. Rather, it focuses on community spirit, solidarity and wide usership of all the available experiences.
T +41 41 780 51 82
Please register to the forum and if you like, your story/questions would be welcome, so we can get others to respond with their experiences.
The thematic pages on IGAN's homepage are an information platform, from which all visitors can acquire basic knowledge about acoustic neuroma brain tumours under the motto of «Helping you to help yourself».
This is the first recommended step! At first the person affected profits only themselves, if he/she (still) remains passive in the community, however he/she also creates the conditions at the same time, to be able to take a second step actively in the exchange of experiences with others.
Reading the thematic pages on acoustic neuroma, its symptoms, the different diagnoses and treatments and rehabilitation, as well as browsing and reading in the forum, should always lead the way towards active participation in the forum if possible, because as a result very often some of your «own» questions and problems have already been clarified and because, on the other hand, the remaining questions could be clearer and formulated with more emphasis.
Prof. Dr A. Sepehrnia
Hirslanden St. Anna Hospital, Lucerne
Prof. Dr Marcos Tatagiba
Tübingen University Hospital
Both specialist physicians can also be consulted if a second opinion is required for the therapy decision.
In the case of enquiries, it is advisable to make a concise but exhaustive note of the anamnesis (the course of the disease) and to compile all the available findings, in particular the most recent MRI. In which way and when these data should then be made available to the physician is explained at an appointment - usually with the secretary's office.
In this regard, reports assist the forum members with the selection of the specialist.
Through the acoustic neuroma forum IGAN offers a platform for exchanging experiences on all aspects of acoustic neuroma brain tumours, in a virtually unrestricted way. True to the principles of an interest community, the focal point clearly rests on public, guided dialogues from those seeking advice and those affected. However, it is possible and also intended that each registered forum member can make individual contact with individual people affected and to the moderator, and can then exchange confidential messages with them. If the chemistry is right between the parties all other forms of contact (E-mail, fax, letter or telephone) can be agreed individually.
The aspect of data protection is always respected; E-mail addresses, home addresses, fax and telephone numbers are taboo subjects in public domain.