An interest group's focus on brain tumours.....
If you are seeking information, advice and help regarding acoustic neuroma brain tumours, then you've come to the right homepage.
The Acoustic Neuroma Interest Group (IGAN) is a free, non-organised self help group in the form of a "loose confederation", in other words without any legal form, without a charter, without any formal declaration of membership and without any membership fees. IGAN brings people and institutions together from across different countries, who have a common problem - an acoustic neuroma - and who want to do something together voluntarily to find a solution to this problem, under the motto of "helping people to help themselves".
IGAN supports research projects on acoustic neuroma.
The Acoustic Neuroma Interest Group is supported by a Medical Advisory Board.
» Medical Advisory Board
The necessary administrative work for IGAN is managed by a small group of employees led by IGAN founder, Guido Fluri, in Cham (Switzerland)
» Contact us and Help
IGAN does not run a hotline or call centre and has no full-time employees.
The Acoustic Neuroma Interest Group (IGAN) focuses primarily on the internet and offers information, exchanges of ideas, contacts and help through this platform and via its portal. This is delivered in two ways:
Topic-based information on the homepage and through the acoustic neuroma forum. .
The acoustic neuroma forum offers those affected by acoustic neuroma, their relatives and other interested parties the chance to ask questions about acoustic neuroma brain tumours and to be able to use the views and experiences of others. It is a platform for helping people to help themselves. The list of topics ranges from symptoms and diagnosis to concerns before operations and decisions on therapy, up to rehabilitation and post-operative quality of life, and it can be expanded as required. In the acoustic neuroma forum confidential messages can be exchanged, virtually "tête-à-tête", along with public contributions. Everyone is able to read messages in the forum without any preconditions. However, you must register in order to post messages.
The thematically arranged pages on the IGAN homepage are the basis for the comprehensive information on acoustic neuroma brain tumours. Here you will find interesting and acoustic neuroma-related items and everything you need to know about this disease. These pages should be read first, as they provide basic knowledge which is helpful for all further contacts and activities.
An acoustic neuroma is a brain tumour that doesn't form any metastases. Because an acoustic neuroma begins to grow on the nerve walls of the inner ear (the Schwann sections) and it grows in the cerebellopontine angle in the direction of the brain stem at the base of the skull, it is also called a vestibular schwannoma or cerebellopontine angle tumour. The acoustic neuroma is the most common skull based brain tumour.
Acoustic neuromas mostly grow very slowly and as such often symptoms appear very late: progressive hearing loss, acute hearing loss, tinnitus, vertigo, unsteady walking, head and neck pains, in later stages there can also be an appearance of facial palsy (facial paralysis) or painful trigeminal neuralgia. The fact that these symptoms are also present for a range of other illnesses means that acoustic neuromas are suspected of being the cause too seldom and too late.
The abovementioned symptoms can be detected through various hearing tests (audiometry), brain wave measurements and balance tests, without these necessarily being indicative of an acoustic neuroma. An imaging Magnetic Resonance Tomography (MRT) should definitely be carried out if there is simultaneous occurrence of a number of symptoms. It is the only diagnosis method that immediately delivers in detecting acoustic neuromas.
Fundamentally, there are two treatments on offer for acoustic neuroma: an operation or radiotherapy. The choice of therapy is dependent on the position and size of the acoustic neuroma, the resultant effects on the nerves and brain, as well as the patient's constitutional condition. Due to the generally slow growth of the tumour a decision on which course of treatment to opt for can be postponed under certain conditions and with certain risks, (i.e. "watch and wait" or "wait and see").
The amount and degree of pressure which the acoustic neuroma has released before the operation, but also possible temporary pressure.
Adverse effects on nerves and balance from an operation can make targeted rehabilitation advantageous. Although there is no special, quasi standardised acoustic neuroma rehabilitation, there are recommendations for what you should do under certain conditions. It also includes tips on how to find a good rehabilitation clinic and how to apply for treatment.
The latest from IGAN's administration work, press releases on acoustic neuroma, new trends in acoustic neuroma diagnosis and treatment, agreements with health insurance funds and much more on different topics of interest to those affected by acoustic neuromas are briefly outlined here.
The Homepage doesn't only provide the "obligatory" links to pages of friendly self-help groups and other institutions, but rather it offers a variety of links arranged by topic about acoustic neuromas, ranging from contributions in general , more understandable language up to dissertations, which are in their original wording.
Internet portal and forum on acoustic neuroma brain tumours
Postbox | CH-6330 Cham | Phone +41 41 785 51 82 | Fax +41 41 785 56 09
www.akustikusneurinom.info | firstname.lastname@example.org